Research Opportunity!
We have an opportunity to participate in research, available to both caregivers and rheumatologists.
CAREGIVERS: We are recruiting caregivers of children with JIA for a research study to develop and pilot a digital health tool for shared decision-making. The goal of this study is to design an app (application or an online platform) that will help patient and families make the best decision about treatment together with their doctor.
The study involves three phases of participation:
1. Be interviewed (over video/web) with a researcher about how you make treatment decisions.
2. Review design of a new patient centered decision-making tool and give feedback.
3. Try out a new digital tool to help with treatment decisions and give feedback.
We are starting with phase one, which involves interviews. By conducting these interviews with you, we hope to learn the information you would like to see in this platform, understand how you make decisions, and learn what information and resources you use to make decisions. We will include what we learn into our platform to improve the decision-making process. You would receive $20 to thank you for participating.
RHEUMATOLOGISTS: We are recruiting pediatric rheumatologists for a research study to develop and pilot a digital health tool for shared decision-making. The goal of the study is to design an app (application or an online platform) that will help patient and families make the best decision about treatment together with their doctor.
The study involves three phases of participation:
1. Be interviewed (over video/web) with a researcher about how you make treatment decisions.
2. Review design of a new patient centered decision-making tool and give feedback.
3. Try out a new digital tool to help with treatment decisions and give feedback.
We are starting with phase one, which involves interviews. By conducting these interviews with you, we hope to learn the information you would like to see in this platform, understand how you make treatment decisions, learn what information and resources you use to make decisions; and learn about what information and resources you would like patients/families to have access to. We will include what we learn into our platform to help better identify the treatment approach that’s best for your patient.
If you have questions about the study and may be interested in participating,
reach out to the study principal investigator, Dr. Esi Morgan (at
Esi.Morgan@seattlechildrens.org) for more information.