PUBLICATIONS

Paediatric rheumatologists do not score the physician’s global assessment of juvenile idiopathic arthritis disease activity in the same way

Maria Backström, Maarit Tarkiainen, Beth S Gottlieb, Chiara Trincianti, Tingting Qiu, Esi Morgan, Daniel J Lovell, Francesca Bovis, Eliisa Löyttyniemi, Nicolino Ruperto, Paula Vähäsalo, Alessandro Consolaro, for the Pediatric Rheumatology International Trials Organization, the Pediatric Rheumatology Care & Outcomes Improvement Network and the Pediatric Rheumatology European Society JIA Working Party, Paediatric rheumatologists do not score the physician’s global assessment of juvenile idiopathic arthritis disease activity in the same way, Rheumatology, Volume 62, Issue 10, October 2023, Pages 3421–3426

Pediatric Rheumatology Care and Outcomes Improvement Network's Quality Measure Set to Improve Care of Children With Juvenile Idiopathic Arthritis

Bingham CA, Harris JG, Qiu T, Gilbert M, Vora SS, Yildirim-Toruner C, Ferraro K, Lovell DJ, Taylor J, Mannion ML, Weiss JE, Laxer RM, Shishov M, Oberle EJ, Gottlieb BS, Lee TC, Pan N, Burnham JM, Fair DC, Batthish M, Hazen MM, Spencer CH, Morgan EM; Pediatric Rheumatology Care and Outcomes Improvement Network. Pediatric Rheumatology Care and Outcomes Improvement Network's Quality Measure Set to Improve Care of Children With Juvenile Idiopathic Arthritis. Arthritis Care Res (Hoboken). 2023 Jun 12. doi: 10.1002/acr.25168. Epub ahead of print. PMID: 37308458.

Capturing critical data elements in Juvenile Idiopathic Arthritis: initiatives to improve data capture

Ryan, M.E., Warmin, A., Binstadt, B.A. et al. Capturing critical data elements in Juvenile Idiopathic Arthritis: initiatives to improve data capture. Pediatr Rheumatol 20, 83 (2022). https://doi.org/10.1186/s12969-022-00745-z

Understanding the Practice and Process of Patient Reported Outcome Measures Collection in North American Pediatric Rheumatology Clinics: A Survey of the Pediatric Rheumatology-Care and Outcomes Improvement Network

Goh Y, Morgan E, Ryan M, Gottlieb B, Pan N. Understanding the Practice and Process of Patient Reported Outcome Measures Collection in North American Pediatric Rheumatology Clinics: A Survey of the Pediatric Rheumatology-Care and Outcomes Improvement Network [abstract]. Arthritis Rheumatol. 2022; 74 (suppl 9).

Hitting the Target Together: Supporting Shared Decision-Making with Juvenile Idiopathic Arthritis (JIA) Patients Followed in the Out-Patient Rheumatology Setting at the Hospital for Sick Children

Marcuz J, Feldman B, Goh Y, Kim N, Lahiry P, Levy D, Limenis E, McColl J, O'Brien C, Paetkau S, Tse S, Whitney K, Laxer R. Hitting the Target Together: Supporting Shared Decision-Making with Juvenile Idiopathic Arthritis (JIA) Patients Followed in the Out-Patient Rheumatology Setting at the Hospital for Sick Children [abstract]. Arthritis Rheumatol. 2022; 74 (suppl 9).

Pediatric Rheumatology Care and Outcomes Improvement Network Demonstrates Outcome Improvement for Children with Juvenile Idiopathic Arthritis

Bingham C, Harris J, Vora S, Gilbert M, Yildirim-Toruner C, Ferraro K, Qiu T, Burnham J, Batthish M, Gottlieb B, Lovell D, Laxer R, Lee T, Bullock D, Spencer C, Weiss J, Hazen M, Oberle E, Mannion M, Pan N, Shishov M, Fair D, Toth M, Wiegand K, Morgan E. Pediatric Rheumatology Care and Outcomes Improvement Network Demonstrates Outcome Improvement for Children with Juvenile Idiopathic Arthritis [abstract]. Arthritis Rheumatol. 2022; 74 (suppl 9).

Consensus Approach to a Treat-to-target Strategy in Juvenile Idiopathic Arthritis Care: Report From the 2020 PR-COIN Consensus Conference

Tala El Tal, Meghan E. Ryan, Brian M. Feldman, Catherine April Bingham, Jon M. Burnham, Michelle Batthish, Danielle Bullock, Kerry Ferraro, Mileka Gilbert, Miriah Gillispie-Taylor, Beth Gottlieb, Julia G. Harris, Melissa Hazen, Ronald M. Laxer, Tzielan Chang Lee, Daniel Lovell, Melissa Mannion, Laura Noonan, Edward Oberle, Janalee Taylor, Jennifer E. Weiss, Cagri Yildirim Toruner, Esi M. Morgan. The Journal of Rheumatology May 2022, 49 (5) 497-503; DOI: 10.3899/jrheum.210709

Consensus Approach to a Treat to Target Strategy in Juvenile Idiopathic Arthritis Care: Report from the 2020 Pediatric Rheumatology Care and Outcomes Improvement Network Consensus Conference

El Tal T, Ryan M, Feldman B, Bingham C, Burnham J, Batthish M, Bullock D, Ferraro K, Gilbert M, Gottlieb B, Harris J, Hazen M, Laxer R, Lee T, Lovell D, Mannion M, Noonan L, Oberle E, Paul A, Taylor J, Weiss J, Yildirim-Toruner C, Morgan E. Consensus Approach to a Treat to Target Strategy in Juvenile Idiopathic Arthritis Care: Report from the 2020 Pediatric Rheumatology Care and Outcomes Improvement Network Consensus Conference [abstract]. Arthritis Rheumatol. 2021; 73 (suppl 9).

Exploring Pediatric Tele-Rheumatology Practices During COVID-19: A Survey of the PRCOIN Network

Goh YI, Bullock DR, Taylor J, Pooni R, Lee TC, Vora SS, Yildirim-Toruner C, Morgan EM, Pan N, Harris JG, Warmin A, Wiegand K, Burnham JM and Barbar-Smiley F (2021) Exploring Pediatric Tele-Rheumatology Practices During COVID-19: A Survey of the PRCOIN Network. Front. Pediatr. 9:642460. doi: 10.3389/fped.2021.642460

Telemedicine in Pediatric Rheumatology During COVID-19: The PR-COIN Experience

Goh Y, Pan N, Harris J, Warmin A, Taylor J, Vora S, Barbar-Smiley F, Burnham J, Lee T, Yildirim-Toruner C, Wiegand K, Morgan E. Telemedicine in Pediatric Rheumatology During COVID-19: The PR-COIN Experience [abstract]. Arthritis Rheumatol. 2020; 72 (suppl 10).

Application of Juvenile Idiopathic Arthritis Treatment Guidelines and Factors Associated with Increased Likelihood of Intra-articular Corticosteroid Administration

Balay E, Weiss J, Goh Y, Rubin N, Bullock D. Application of Juvenile Idiopathic Arthritis Treatment Guidelines and Factors Associated with Increased Likelihood of Intra-articular Corticosteroid Administration [abstract]. Arthritis Rheumatol. 2020; 72 (suppl 4).

Implementing Treat to Target Approach in the Care of Juvenile Idiopathic Arthritis Across a Network of Pediatric Rheumatology Centers

Harris JG, Morgan E, Taylor J, Qiu T, Griffin N, Paul A, Bingham CA, Bullock DR, Ferraro F, Gilbert M, Goh YI, Halyabar O, Jones K, Kohlheim M, Lovell DJ, Smitherman E, Vago A, Weiss JE, Yildirim-Toruner C, Young A, Batthish M, Gottlieb B, Hazen M, Laxer RM, Lee T, Mannion M, Olson J, Shishov M, Siddique S, Spencer C, Toth M, Vora SS, Burnham JM. Implementing Treat to Target Approach in the Care of Juvenile Idiopathic Arthritis Across a Network of Pediatric Rheumatology Centers. Pediatric Rheumatology Symposium 2020 [virtual poster]. Arthritis & Rheumatology 2020;72(S1):1-3.

New Juvenile Idiopathic Arthritis Quality Measure Set for the Pediatric Rheumatology Care and Outcomes Improvement Network

Harris J, Morgan E, Vora S, Gilbert M, Yildirim-Toruner C, Griffin N, Ferraro K, Loos S, Qiu T, Paul A, Burnham J, Batthish M, Gottlieb B, Bullock D, Hazen M, Laxer R, Lee T, Mannion M, Olson J, Pan N, Shishov M, Spencer C, Weiss J, Bingham C. New Juvenile Idiopathic Arthritis Quality Measure Set for the Pediatric Rheumatology Care and Outcomes Improvement Network. ACR Convergence 2020.  November 2020 (virtual poster).

JIA Disease Activity Outcomes Across a Multi-center Cohort: Analysis of the Pediatric Rheumatology Care and Outcomes Network (PR-COIN) Registry

Smitherman EA, Huang B, Laxer R, et al. FRI0550 JIA DISEASE ACTIVITY OUTCOMES ACROSS A MULTI-CENTER COHORT: ANALYSIS OF THE PEDIATRIC RHEUMATOLOGY CARE AND OUTCOMES IMPROVEMENT NETWORK (PR-COIN) REGISTRY Annals of the Rheumatic Diseases 2019;78:970-971.

Designing and Testing Treat to Target as a New Care Model in JIA Across a Network of Pediatric Rheumatology Centers

Morgan E, Taylor J, Qiu T, Griffin N, Paul A, Bingham C, Bullock D, Ferraro K, Goh Y, Gilbert M, Halyabar O, Jones K, Kohlheim M, Lovell D, MacDonald D, Smitherman E, Vago A, Weiss J, Yildirim-Toruner C, Young A, Batthish M, Gottlieb B, Harris J, Hazen M, Laxer R, Lee T, Mannion M, Olson J, Shishov M, Vora S, Burnham J. Designing and Testing Treat to Target as a New Care Model in JIA Across a Network of Pediatric Rheumatology Centers [abstract]. Arthritis Rheumatol. 2019; 71 (suppl 10).

Lack of Concordance in Interrater Scoring of the Provider's Global Assessment of Children With Juvenile Idiopathic Arthritis With Low Disease Activity

Taylor J, Giannini EH, Lovell DJ, Huang B, Morgan E.  Lack of Concordance in Inter-Rater Scoring of the Provider's Global Assessment of Children with Juvenile Idiopathic Arthritis with Low Disease Activity. Arthritis Care Res (Hoboken). Arthritis Care Res (Hoboken). 2018 Jan;70(1):162-166.  PMID: 28118522

Development and Implementation of a “Data-in-Once” Model for a Pediatric Rheumatology Learning Health System

Lee T, Bout-Tabaku S, Conkle J, Iyer K, Servick C, Morgan E. Development and Implementation of a “Data-in-Once” Model for a Pediatric Rheumatology Learning Health System [abstract]. Arthritis Rheumatol. 2017; 69 (suppl 10).

Barriers to Adherence in Juvenile Idiopathic Arthritis: A Multicenter Collaborative Experience and Preliminary Results

Favier LA, Taylor J, Loiselle Rich K, Jones KB, Vora SS, Harris JG, Gottlieb BS, Robbins L, Lai JT, Lee T, Kohlheim M, Gill J, Bouslaugh L, Young A, Griffin N, Morgan EM, Modi AC. Barriers to Adherence in Juvenile Idiopathic Arthritis: A Multicenter Collaborative Experience and Preliminary Results.  J Rheumatol. 2018 Feb 1. [Epub ahead of print] PMID: 29419467

Evaluating Disease Activity Outcomes for Juvenile Idiopathic Arthritis across the Pediatric Rheumatology Care and Outcomes Improvement Network (PR-COIN)

Smitherman EA, Huang B, Laxer RM, Bingham CA, Yildirim-Toruner C, Gottlieb B, Weiss J, Lee T, Vora SS, Burnham J, Harris J, Olson JC, Gilbert M, Batthish M, Shishov M, Fleck D, Morgan E.  Evaluating Disease Activity Outcomes for Juvenile Idiopathic Arthritis across the Pediatric Rheumatology Care and Outcomes Improvement Network (PR-COIN) [Abstract 2389]. 2018 ACR/ARHP Annual Meeting, Chicago, IL.  October, 2018.

Enhancing Quality of Care in Childhood-Onset Systemic Lupus Erythematosus by Improving Performance on Quality Indicator Measures in Cardiovascular and Bone Health

Smitherman EA, Furnier A, Taylor J, Burns MB, Brunner H, Morgan E. Enhancing Quality of Care in Childhood-Onset Systemic Lupus Erythematosus by Improving Performance on Quality Indicator Measures in Cardiovascular and Bone Health [abstract]. Arthritis Rheumatol. 2017; 69 (suppl 4).

Design and Implementation of a Decision Aid for Juvenile Idiopathic Arthritis Medication Choices

Brinkman WB, Lipstein EA, Taylor J, Schoettker PJ, Naylor K, Jones K, Vora S, Mims CC, Roth-Wojcicki E, Gottlieb B, Griffin N, Lannon C, Morgan E. Design and Implementation of a Decision Aid for Juvenile Idiopathic Arthritis Medication Choices. Pediatr Rheumatol Online J. 2017 Jun 5;15(1):48. PMID: 28583183.

Development and Implementation of a Patient-Reported Outcomes Measurement Information System (MyRheum)

Lee T, Bout-Tabaku S, Conkle J, Iyer K, Servick C, Morgan E . Development and Implementation of a “Data-in-Once” Model for a Pediatric Rheumatology Learning Health System. [abstract]. Arthritis Rheumatol,2017. 69(suppl 10). 2017 ACR/ARHP Annual Meeting. San Diego, CA, November, 2017.

Utilizing the Pediatric Rheumatology Care and Outcomes Improvement Network to Assess Practice Pattern Variation in Juvenile Idiopathic Arthritis

Smitherman E, Taylor J, Morgan EM, Bingham CA, for the Pediatric Rheumatology Care and Outcomes Improvement Network (PR-COIN). Utilizing the Pediatric Rheumatology Care and Outcomes Improvement Network to Assess Juvenile Idiopathic Arthritis Practice Pattern Variation. [abstract]. Arthritis Rheumatol, 2017. 69(suppl 10). 2017 ACR/ARHP Annual Meeting. San Diego, CA, November, 2017.

Reliability of the Physician Global Assessment Scores for Determination of Disease Activity Status within the Pediatric Rheumatology Care and Outcomes Improvement Network

Groh B, Kristinsson O, Scalzi LV, Bingham CA, Laxer R, Yildirim-Toruner C, Morgan E, Batthish M, Gottlieb B, Harris JG, Passo M, Shishov M, Vora SS. Reliability of the Physician Global Assessment Scores for Determination of Disease Activity Status within the Pediatric Rheumatology Care and Outcomes Improvement Network [abstract]. Arthritis Rheumatol. 2017; 69 (suppl 4).

Utility of Mailed Reminders for Uveitis Screening Guidelines in Patients with Juvenile Idiopathic Arthritis

Ballenger L, Driest K. Utility of Mailed Reminders for Uveitis Screening Guidelines in Patients with Juvenile Idiopathic Arthritis [abstract]. Arthritis Rheumatol. 2017; 69 (suppl 4).

Increased Involvement of Teenagers with Juvenile Idiopathic Arthritis in Treatment Decisions Using Medication Choice Cards: Preliminary Report from a Case-Control Study

Ganguli S, Hoffmann S, Akerman M, Walters H, Gottlieb B. Increased Involvement of Teenagers with Juvenile Idiopathic Arthritis in Treatment Decisions Using Medication Choice Cards: Preliminary Report from a Case-Control Study [abstract]. Arthritis Rheumatol. 2017; 69 (suppl 4).

Improving Care Delivery and Outcomes in Pediatric Rheumatic Diseases

Harris JG, Bingham CA, Morgan EM.  Improving care delivery and outcomes in pediatric rheumatic diseases. Curr Opin Rheumatol. 2016 Mar;28(2):110-6.  PMID: 26780426.

Discordance Between Physician, Patient, and Parent Disease Assessment Scores in Juvenile Idiopathic Arthritis

Fox E, Hsu J, Lee T, Sandborg C, Simard JF. Discordance Between Physician, Patient, and Parent Disease Assessment Scores in Juvenile Idiopathic Arthritis [abstract]. Arthritis Rheumatol. 2016; 68 (suppl 10). Accessed October 15, 2016.

Effect of BMI on Symptoms and Outcomes in Juvenile Idiopathic Arthritis Patients

Weiss JE, Andrews T, Morgan E, Laxer R, Yildirim-Toruner , Bingham CA, Gottlieb B, Lee T, Vora SS, Burnham JM, Olson JC, Passo M, Batthish M, Riebschleger M. Effect of BMI on Symptoms and Outcomes in Juvenile Idiopathic Arthritis Patients.  2016 ACR/ARHP Annual Meeting. Washington, DC. November, 2016.

Leveraging a Learning Network to Implement and Standardize Self-Management Support into Care Delivery:  Experience of Pediatric Rheumatology Care and Outcomes Improvement Network

Taylor J, Modi A, Loiselle K, Broderick J, Jones K, Vora SS, Bingham A, Harris J, Griffin N, Paul A, Lannon C, Morgan E.  Leveraging a Learning Network to Implement and Standardize Self-Management Support into Care Delivery:  Experience of Pediatric Rheumatology Care and Outcomes Improvement Network. 2016 ACR/ARHP Annual Meeting. Washingon, DC.  November, 2016.

Pediatric Rheumatology Care and Outcomes Improvement Network Demonstrates Improvement on Quality Measures for Children with Juvenile Idiopathic Arthritis

Bingham CA, Pratt J, Toruner C, Laxer RM, Gottlieb BS, Weiss JE, Lee TC, Vora SS, Burnham JM, Harris JG, Olson JC, Passo MH, Batthish M, Riebschleger M, Shishov M, Ferraro K, Levy DM, O’Brien C, Whitney K, Griffin N, Paul A, Margolis P, Morgan E.  Pediatric Rheumatology Care and Outcomes Improvement Network Demonstrates Improvement on Quality Measures for Children with Juvenile Idiopathic Arthritis.  2016 ACR/ARHP Annual Meeting. Washington, DC.  November 14, 2016 (oral presentation). Also appears in Arthritis & Rheumatology

Association of Sex, Race and Ethnicity on Disease Outcomes in Juvenile Idiopathic Arthritis Patients

Joseph V, Andrews TR, Morgan E, Laxer R, Toruner C, Lee T, Gottlieb BS, Bingham CA, Vora SS, Burnham JM, Olson JC, Passo MH, Batthish M, Riebschleger M, Weiss JE. Association of Sex, Race and Ethnicity on Disease Outcomes in Juvenile Idiopathic Arthritis Patients [abstract]. Arthritis Rheumatol. 2016; 68 (suppl 10).

Inter-Provider Reliability in Scoring the Physician Global Assessment of Disease Activity Among Patients with Juvenile Idiopathic Arthritis Patients Who Met the ACR Provisional Criteria for Clinical Inactive Disease

Taylor J, Giannini E, Lovell D and DeWitt EM. Inter-Provider Reliability in Scoring the Physician Global Assessment of Disease Activity Among Patients with Juvenile Idiopathic Arthritis Patients Who Met the ACR Provisional Criteria for Clinical Inactive Disease. 2015 ACR/ARHP Annual Meeting. San Francisco, CA. November, 2015.

Factors Associated with Performance on Quality Measures Pertaining to Assessment of Disease Activity in Juvenile Idiopathic Arthritis

Huber LH, Passo MH, Morella K, Ruth NM. Factors Associated with Performance on Quality Measures Pertaining to Assessment of Disease Activity in Juvenile Idiopathic Arthritis [abstract]. Arthritis Rheumatol. 2015; 67 (suppl 10).

Towards Reliable Implementation and Optimal Use of Medication Decision Aid Cards for Shared Decision Making in Juvenile Idiopathic Arthritis

Esi M Morgan DeWitt, Janalee Taylor, Karla B Jones, Murray H Passo, Catherine C Mims, Jesse Pratt, Ellen A Lipstein, Nancy Griffin, Sheetal S Vora, Beth S Gottlieb, Elizabeth Roth-Wojcicki. 2014 ACR/ARHP Annual Meeting

Increasing Rates of Remission in Juvenile Idiopathic Arthritis through a Quality Improvement Learning Network – the Pediatric Rheumatology Care and Outcomes Improvement Network

DeWitt EM, Ardoin SP, Bingham CA, Gottlieb BS, Laxer R, Griffin N, Pratt J , Paul A, Lovell, D, Olson JC, Passo MH, Weiss JE, Lee TC, Vora SS, Hazen MM, Margolis P. 2014 ACR/ARHP Annual Meeting

Pediatric Rheumatology Care and Outcomes Improvement Network Demonstrates Performance Improvement On Juvenile Idiopathic Arthritis Quality Measures

Harris JG, DeWitt EM, Laxer RM, Ardoin SP, Gottlieb BS, Olson JC, Passo MH, Weiss JE, Lovell DJ, Lee TC, Vora SS, Griffin N, Stock JA, Darbie LM, Bingham CA. 2013 ACR/ARHP Annual Meeting

Development Of Tools To Facilitate Shared Decision Making About Medications For Juvenile Idiopathic Arthritis – A Project Of The Pediatric Rheumatology Care and Outcomes Improvement Network

Esi Morgan DeWitt, Ellen A Lipstein Katie Staun, Linda Scherer, Janalee Taylor, Carole M Lannon, William B Brinkman. 2013 ACR/ARHP Annual Meeting

Understanding Treatment Decision Making in Juvenile Idiopathic Arthritis: A Qualitative Assessment

Lipstein EA, Brinkman WB, Sage J, Lannon CM, Morgan Dewitt E. Understanding treatment decision making in juvenile idiopathic arthritis: a qualitative assessment. Pediatr Rheumatol Online J. 2013 Sep 30;11(1):34. PMID: 24079577

Increasing Quality of JIA Treatment: The Pediatric Rheumatology Care and Outcomes Improvement Network (PR-COIN)

Beukelman T,  Bingham CA,  Gottlieb BS, Griffin N, Laxer R, Marsolo K, Passo MH, Lannon C,. Margolis P, DeWitt EM. Increasing quality of JIA treatment: The Pediatric Rheumatology Care and Outcomes Improvement Network (PR-COIN). Annual European Congress of Rheumatology EULAR 2012 Berlin, Germany, 6 – 9 June 2012.

Improving Delivery of Care for JIA Across a Multi-Center Network Using a Shared Data Registry and Quality Improvement Science: The Pediatric Rheumatology Care and Outcomes Improvement Network

Bingham CA, Darbie LM, Marsolo K, Weiss JE, Ardoin SP, Laxer RM, Lovell DJ, Passo MH, Vora S, Gottlieb BS, Beukelman T, Griffin N, Stock JA, Miller ML, Onel K, Ronis T, Margolis P, DeWitt EM. Improving Delivery of Care for JIA Across a Multi-Center Network Using a Shared Data Registry and Quality Improvement Science: The Pediatric Rheumatology Care and Outcomes Improvement Network. American College of Rheumatology (ACR/ARHP) Scientific Meeting 2012.  Washington D.C.  November 10-14, 2012.

Enhancing Shared Decision-Making in Juvenile Idiopathic Arthritis

Sage JM, Lipstein EA, Brinkman WB, Lannon CM, DeWitt EM. Enhancing Shared Decision-Making in Juvenile Idiopathic Arthritis. American College of Rheumatology (ACR/ARHP) Scientific Meeting 2012.  Washington D.C.  November 10-14, 2012.

Pediatric Rheumatology Care and Outcomes Improvement Network Demonstrates Performance Improvement on Juvenile Idiopathic Arthritis Quality Measures

DeWitt EM, Beukelman T, Gottlieb BS, Griffin N, Kimura Y, Barnes I, Passo M.   Measuring Quality of Care in Juvenile Idiopathic Arthritis: The Pediatric Rheumatology Care and Outcomes Improvement Network (PR-COIN). American College of Rheumatology (ACR/ARHP) 2011 Pediatric Rheumatology Symposium. Miami, FL. June 3, 2011; ACR Annual Scientific Meeting November 4-9, 2011.